On February 28th 2025, we marked Rare Disease Day, a time to raise awareness and support for the 300 million people worldwide living with rare conditions. This year’s theme, Stronger Together, highlighted the power of community in driving change.

To celebrate, the International XLH Alliance (IXLHA) gathered selfies from our global XLH community, creating this beautiful collage that symbolises unity. Each photo represents a unique journey, but together, we amplify awareness, educate, and support one another.

Thank you to everyone who took part!