XLH UK supports those with X-linked hypophosphataemia and related disorders.
Find out more about starting burosumab as an adult with XLH
XLH UK strategy day in London
On Saturday 11th January, some of the trustees of XLH UK came together in London to reflect on everything that had happened in 2024 and a great year for our community! We celebrated the progress made in raising awareness and supporting the XLH community,...
Research Paper on XLH Quality of Life
XLH UK have collaborated with Triangulate Health to scientifically verify the research evidence regarding the impact of XLH on the lives of XLH patients and those of their families. Titled 'Exploring Perspectives of People with XLH: Insights into Disease Impact, Daily...
NHS guidelines for adults on burosumab
The NHS has now published guidelines so that specialists can prescribe burosumab to UK adults with a diagnosis of XLH. You can watch the recording of a webinar that XLH UK ran, to provide more information about the implementation of the guidelines. We also have a...