Action for Access

Patient Experience Survey 2022: Living with X-Linked Hypophosphataemia (XLH).

XLH UK & Metabolic Support UK are providing an understanding of what it is like to live with XLH as part of the evaluation of Burosumab in England, Scotland and Wales.

Please share your experiences to ensure your voice is heard: https://xlhuk.org/survey/

XLH UK support those with XLH and related disorders.

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