XLH UK supports those with X-linked hypophosphataemia and related disorders.
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Smile! We’re Talking Teeth
Friday 20th March is World Oral Health Day It's a good opportunity to talk about XLH and teeth. Did you know that teeth develop differently if you have XLH? For one thing, the enamel – the outer layer of your tooth – is thinner and prone to microscopic cracks. This...
Holly runs three half marathons for XLH UK
We're delighted to share an incredible fundraising achievement from Holly Knight, who has now completed three half marathons for XLH UK this year! Earlier in the year, we celebrated her completion of the Gloucester Half Marathon, and she's since gone on to run not...
Celebrating award winning patient stories
Award recognition for XLH UK patient stories! We are excited to share that our patient stories about the impact of XLH on quality of life have been recognised as best in class. Our researchers Joe Bonnell and Rachel Lewis were celebrated for the XLH UK research at the...