Menu
Donate

Action for Access

Patient Experience Survey 2022: Living with X-Linked Hypophosphataemia (XLH).

XLH UK & Metabolic Support UK are providing an understanding of what it is like to live with XLH as part of the evaluation of Burosumab in England, Scotland and Wales.

Please share your experiences to ensure your voice is heard: https://xlhuk.org/survey/

XLH UK support those with XLH and related disorders.
Donate Now

Help us achieve our charitable aims

Donate now!

Connect with our community

Join our private Facebook group to connect with families alike
Click to view our group

News and Events

Call to Action, Conference, News
XLH UK Family Day, Sunday 2nd October 2022 “A Great Day”
Call to Action, News, Treatment
Latest news from NICE’s Topic Selection of using burosumab in XLH adults (September 2022)
Get every update

Subscribe Now

Our Registration form and Privacy Policy can be found here.