XLH UK supports those with X-linked hypophosphataemia and related disorders.
Find out more about starting burosumab as an adult with XLH
Research Paper on XLH Quality of Life
XLH UK have collaborated with Triangulate Health to scientifically verify the research evidence regarding the impact of XLH on the lives of XLH patients and those of their families. Titled 'Exploring Perspectives of People with XLH: Insights into Disease Impact, Daily...
NHS guidelines for adults on burosumab
The NHS has now published guidelines so that specialists can prescribe burosumab to UK adults with a diagnosis of XLH. You can watch the recording of a webinar that XLH UK ran, to provide more information about the implementation of the guidelines. We also have a...
Connecting XLH Groups across the world
Post from Sarah Mitson: On the weekend of 21st September, I had the pleasure of attending the International XLH Alliance meeting as the XLH UK representative. Our very own Oliver Gardiner is the Co-Chair of IXLHA and was leading the discussions. The alliance is...