XLH UK supports those with X-linked hypophosphataemia and related disorders.
Have you visited the RUDY site recently?
Insights on stiffness
The RUDY study has been looking at stiffness in adults with XLH — where it shows up in the body, and whether burosumab helps in everyday life. So far, we’ve learned that: • People on burosumab often feel less stiff, especially in their shoulders and wrists (which...
Smile! We’re Talking Teeth
Friday 20th March is World Oral Health Day It's a good opportunity to talk about XLH and teeth. Did you know that teeth develop differently if you have XLH? For one thing, the enamel – the outer layer of your tooth – is thinner and prone to microscopic cracks. This...
Holly runs three half marathons for XLH UK
We're delighted to share an incredible fundraising achievement from Holly Knight, who has now completed three half marathons for XLH UK this year! Earlier in the year, we celebrated her completion of the Gloucester Half Marathon, and she's since gone on to run not...