XLH UK supports those with X-linked hypophosphataemia and related disorders.
Have you visited the RUDY site recently?
New manager for XLH UK
XLH UK is delighted to welcome Cat Price as our new charity manager. Cat has been supporting voluntary sector organisations to achieve their goals since 2017, following 15 years of experience in NHS management. Most recently she has been running PRDA, a...
Insights on stiffness
The RUDY study has been looking at stiffness in adults with XLH — where it shows up in the body, and whether burosumab helps in everyday life. So far, we’ve learned that: • People on burosumab often feel less stiff, especially in their shoulders and wrists (which...
Smile! We’re Talking Teeth
Friday 20th March is World Oral Health Day It's a good opportunity to talk about XLH and teeth. Did you know that teeth develop differently if you have XLH? For one thing, the enamel – the outer layer of your tooth – is thinner and prone to microscopic cracks. This...