XLH UK supports those with X-linked hypophosphataemia and related disorders.

Register to attend the 2025 Community Day 

Community Day 2025

Community Day 2025

STOP PRESS! Speakers announced We are delighted to confirm the speakers at the next XLH UK Community Day on Sunday 1st June 2025. There is still time to register for the event here. Keynote Speaker - Professor Kassim Javaid on the new Oxford University research...

read more
Holly runs the Gloucester Half Marathon for XLH UK

Holly runs the Gloucester Half Marathon for XLH UK

We’re sending huge congratulations to Holly Knight, who completed the Gloucester Half Marathon on 30th March 2025 in support of XLH UK! This cause is a personal one for Holly and her family, after her five-year-old son Sebastian was diagnosed with XLH last year...

read more
Rare Disease Day 2025: Stronger Together

Rare Disease Day 2025: Stronger Together

On February 28th 2025, we marked Rare Disease Day, a time to raise awareness and support for the 300 million people worldwide living with rare conditions. This year’s theme, Stronger Together, highlighted the power of community in driving change. To celebrate, the...

read more

Would you like to receive our newsletter?