XLH UK strategy day in London

 

On Saturday 11th January, some of the trustees of XLH UK came together in London to reflect on everything that had happened in 2024 and a great year for our community!

We celebrated the progress made in raising awareness and supporting the XLH community, including the the NICE decision to fund burosumab for adults. 

Looking ahead to 2025, we will continue to support you as the NHS rolls out burosumab more widely. We are committed to our mission to listen, represent and inform the XLH community. Our review of 2024 and strategy for this year outlines how we aim to build on last year’s momentum – you can check it out here.

Thanks to everyone for their support for XLH UK, please contact us if you would like to get involved by emailing contact@xlhuk.org.