XLH Library
We have stored some further reading for you to download.
Please get in touch if you want to share other published research at contact@xlhuk.org
Clinical practice recommendations for the diagnosis and management of X-linked Hypophosphataemia
(Published: 08 Jan 2025)
XLH UK Information leaflet
(Published: Jan 2025)
Exploring Perspectives of People with XLH: Insights into Disease Impact, Daily Challenges, and Treatment Views
(Published: 20 December 2024)
XLH UK Dental leaflet
(Published: 2021)
Proposed framework on a networked service model for care of adults with rare bone conditions in England
(Published: June 2022)
The unrecognised burden of XLH in adults
(Published: June 2020)
Prevalence and Mortality of Individuals With X-Linked Hypophosphatemia: A United Kingdom Real-World Data Analysis
(Published: November 2019)
International XLH Alliance Our 12 Recommendations
(Published: October 2021)
A Consensus Statement on the evaluation, diagnosis and care of patients with X-linked hypophosphataemia
(Published: April 2022)
Dental impact of anti-fibroblast growth factor 23 therapy in X-linked hypophosphatemia
(Published: December 2023)