XLH Library

We have stored some further reading for you to download.

Please get in touch if you want to share other published research at contact@xlhuk.org

Clinical practice recommendations for the diagnosis and management of X-linked Hypophosphataemia

(Published: 08 May 2019)

XLH UK Dental leaflet

(Published: 2021)

Proposed framework on a networked service model for care of adults with rare bone conditions in England

(Published: June 2022)

The unrecognised burden of XLH in adults

(Published: June 2020)

Prevalence and Mortality of Individuals With X-Linked Hypophosphatemia: A United Kingdom Real-World Data Analysis

(Published: November 2019)

International XLH Alliance Our 12 Recommendations

(Published: October 2021)

A Consensus Statement on the evaluation, diagnosis and care of patients with X-linked hypophosphataemia

(Published: April 2022)

Dental impact of anti-fibroblast growth factor 23 therapy in X-linked hypophosphatemia

(Published: December 2023)

Find videos and webinars on our YouTube channel