We’re sending huge congratulations to Holly Knight, who completed the Gloucester Half Marathon on 30th March 2025 in support of XLH UK!

This cause is a personal one for Holly and her family, after her five-year-old son Sebastian was diagnosed with XLH last year following months of uncertainty. In her own words:“I chose to take on this challenge as it’s something I have always wanted to do, and in my 40th year on this planet, I thought I’d give it a go (now or never, as they say!) and at the same time raise awareness for XLH and XLH UK.”

Here’s what she had to say about the big day: “I did it! It was a great day—tough at times—but the beautiful weather and friendly people really helped make it a very special event.”

We’re incredibly proud to share that Holly has already raised over £1,500 to support our work for the XLH community—and donations are still coming in! There’s still time to donate here.

Thank you, Holly, for your amazing effort, determination, and generosity. What a remarkable achievement.