Support for you

With less than 500 people in UK with XLH it can be easy to feel that you are on your own. As the only registered patient group specifically for those with XLH and related disorders, XLH UK works to build a strong community for XLHers and their families.

Check out our events and different ways to connect with your community. Come join us!



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Have you joined our Facebook Group? This is a private group with people interested in XLH, where all sorts of matters get aired and commented on.