STOP PRESS! Speakers announced

We are delighted to confirm the speakers at the next XLH UK Community Day on Sunday 1st June 2025. There is still time to register for the event here.

Keynote Speaker – Professor Kassim Javaid on the new Oxford University research program on XLH.

Expert speaker – Ms Suzanne Sykes, Specialist Dentist on Dental care for XLH

+ Q&A with community members ‘Living your best life’

We are returning to the National Conference Centre, Birmingham – a fantastic venue conveniently located next to the National Motorcycle Museum, with excellent transport links.

We have once again secured a National Lottery award from The National Lottery Community fund. This support allows us to host even more of the XLH UK community and to support those who most need it for travel. If you would like to come but are not able to cover the cost of tickets to Birmingham, please let us know when you register.

We can’t wait to bring the community together again for another lovely day.  Register now to be part of this event.