We are excited to announce that the next XLH UK Community Day will take place on Sunday 1st June 2025. You can now register for the event here.

Following the success of last year’s event, we’re returning to the National Conference Centre, Birmingham – a fantastic venue conveniently located next to the National Motorcycle Museum, with excellent transport links. It was a wonderful gathering in 2024, and we can’t wait to bring the community together again for another lovely day. 

We will be organising expert speakers on different aspects of XLH and providing lunch along with family entertainment, giving you time and space to meet others in the community. The full agenda will be shared closer to the date – keep your eyes peeled for updates! 

We are also pleased to share that we have once again secured a National Lottery award from The National Lottery Community fund. This support allows us to expand what we offer and to welcome even more of the XLH UK community. We also have a fund available to support those who most need it for travel. If you would like to come but are not able to cover the cost of tickets to Birmingham, please let us know on the registration form – we want to make sure as many people as possible can join us.

We can’t wait to see you there! Register now and be part of this special day.