• Connect – 12th November 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or […]

  • Connect with an Expert – 23rd March 2026

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or […]

  • Connect with an Expert

    Online

    Following the success of our last Connect with a Expert, Professor Kassim Javaid - Professor of Osteoporosis and Adult Rare Bone Diseases - will be joining us to discuss the […]

  • Connect

    Join us for our next XLH Connect - a supportive online space for our community to check in, share experiences, and chat about living with XLH. Whether you're looking for […]