• XLH Patient Family Day. October Sunday 2nd 2022
11am to 4pm
Macdonald Hotel, Manchester, M1 2PG
Our event is free to attend

The Family Day is organised and funded by XLH UK. Dedicated to providing trusted and verified information in a relaxing environment, the event brings together those affected by XLH. All ages are welcome to attend. Starting with short, informative presentations until lunchtime, followed by a light sandwich buffet lunch and concluding with further networking and some entertainment for the children.

In order to help us with numbers, please use the registration form below. The day will be shaped around what you need from us, so, when you pre-register, you will have the opportunity to tell us what sessions you would most value.

Car park information for those travelling by car:
Macdonald Manchester Hotel Car Park Berry Street, M1 2AD

Secure onsite car park located just behind the hotel. £15.00 for the day or £25.00 for 24 Hours. Please note: Guests can get further instruction or drop off at the front of the hotel in the waiting bay. For special access, there is a ramp to main reception and two lifts to The Piccadilly Suite where there are accessible toilets.

Alternative car parking information
Just Park Manchester Station, NCP Travis St, Manchester M1 2PG, £4.00 for 12 Hours
SIP Car Parks Limited, 58 Baring Street Manchester M1 2BG, £3.50 for 12 Hours
Q-Park Piccadilly Place, 16 Whitworth St, Manchester M1 3BS, £18 for 8hrs, £7.50 for 8hrs at weekends

Please check out our FAQ for further details

Previous Events

11 October, 2020, XLH Session (updates, treatments, strategy and the communty), MSUK. Online.

12 October, 2019, Metabolic Support and XLH UK. Birmingham

6 April, 2019, XLH Patient Information Day, Medialis and XLH UK and Birmingham Women’s and Children’s NHS Foundation Trust

14 October, 2017, Climb, and Central Manchester Healthcare Trust. Birmingham

14 September 2013, XLH UK and XLH Network, Inc. The Vyne Basinstoke

8 September, 2012, XLH UK and XLH Network, Inc. Basildon Park. Reading

16 October, 2010, The first XLH families meet, Wallingford