XLH UK strategy day in London

XLH UK strategy day in London

  On Saturday 11th January, some of the trustees of XLH UK came together in London to reflect on everything that had happened in 2024 and a great year for our community! We celebrated the progress made in raising awareness and supporting the XLH community,...
Research Paper on XLH Quality of Life

Research Paper on XLH Quality of Life

Research shows impact of XLH on quality of life XLH UK have collaborated with Triangulate Health to scientifically verify the research evidence regarding the impact of XLH on the lives of XLH patients and those of their families. Titled ‘Exploring Perspectives...
Connect – May 2025

Connect – May 2025

Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host...
Connect – May 2025

Connect – April 2025

Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host...
Connect – May 2025

Connect – March 2025

Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host...