On Saturday 21st June, Northern Ireland had its own XLH Family Day and it was a brilliant success!

The event brought together families affected by XLH for a day of connection, support, and community. We’ve been told the feedback from parents was really positive, and it’s wonderful to hear that many have stayed in touch since – just what the organisers had hoped for. With such a positive response, there’s already talk of making it an annual event.

A big well done to everyone involved in making it happen!