Calendar of Events

Latest Past Events

Connect with an Expert

Online

Following the success of our last Connect with a Expert, Professor Kassim Javaid - Professor of Osteoporosis and Adult Rare Bone Diseases - will be joining us to discuss the complex relationship between XLH and Parathyroid hormone. They'll be a Q&A, so plenty of opportunity to ask any questions you may have. Put the kettle […]

Connect with an Expert – 23rd March 2026

Zoom (online meeting)

Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

Connect – 12th November 2025

Zoom (online meeting)

Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]