• Connect – March 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • Connect – April 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • Connect – May 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • XLH UK Community Day 2025

    National Conference Centre, Birmingham Coventry Road, United Kingdom

    A huge thank you to everyone who joined us in Birmingham for our 2025 Community Day on Sunday 1st June! It was fantastic to welcome so many of you in person. The day was filled with insightful talks, great conversations, and a real sense of community. We heard from Professor Kassim Javaid on the latest […]

  • XLH Northern Ireland Family Day

    The Holiday Inn Express, University Street, Belfast The Holiday Inn Express, University Street, Belfast
  • Connect – July 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • Connect – August 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • Connect – September 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • Connect – October 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • Connect – 12th November 2025

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • Connect with an Expert – 23rd March 2026

    Zoom (online meeting)

    Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]

  • Connect with an Expert

    Online

    Following the success of our last Connect with a Expert, Professor Kassim Javaid - Professor of Osteoporosis and Adult Rare Bone Diseases - will be joining us to discuss the complex relationship between XLH and Parathyroid hormone. They'll be a Q&A, so plenty of opportunity to ask any questions you may have. Put the kettle […]