Our 2023 Family Day was held at Engineers’ House in Central Bristol. People of all ages attended, and it was a wonderfully friendly meeting with lots of opportunity to socialise and share experiences.
Dr Matthew Roy’s informative session ‘The use of Burosumab in adults: a Bristol experience’ was a particular hi-light along with the presentation to our amazing fundraiser Jennie McILmail and her Battleborn coach JB. Patient stories were shared throughout the day, and we discussed the launch of the online service XLH Connect to offer new opportunities for engagement within our community. Entertainment-wise, Miss Balloonatron’s creations wowed everyone, keeping her very busy throughout her visit!