Dec 15, 2025
We’re delighted to share an incredible fundraising achievement from Holly Knight, who has now completed three half marathons for XLH UK this year! Earlier in the year, we celebrated her completion of the Gloucester Half Marathon, and she’s since gone on to...
Nov 9, 2025
We’re sending a huge congratulations to Mhairi Duncan for completing the Lisbon Marathon on 25th October 2025, raising funds and awareness for XLH UK in the process. Mhairi took on this challenge not only as a personal milestone but to support the community. And...
Apr 7, 2025
We’re sending huge congratulations to Holly Knight, who completed the Gloucester Half Marathon on 30th March 2025 in support of XLH UK! This cause is a personal one for Holly and her family, after her five-year-old son Sebastian was diagnosed with XLH last year...
Aug 23, 2023
Leo’s Mission has been fundraising for XLH UK for many years. Robyn Sharp has XLH and her family set up the campaign in the name of Leo, Robyn’s son. Leo and his sister Eva both have XLH and have had to have surgery to relieve pressure on the brain. Leo’s Mission...
Aug 23, 2023
In April 2023, Jennie decided to run in Battleborn’s Fitness NI relay teams in aid of XLH UK at the Belfast Marathon. Jennie was diagnosed with XLH aged 10 and never thought running was something she’d be able to do. However, under the guidance of their coach Jonathan...
