Leo’s Mission has been fundraising for XLH UK for many years. Robyn Sharp has XLH and her family set up the campaign in the name of Leo, Robyn’s son. Leo and his sister Eva both have XLH and have had to have surgery to relieve pressure on the brain.

Leo’s Mission raises awareness and funds for XLH UK through sponsored events, bucket collecting at the local mall in Barnsley and Christmas raffles. They even managed to get valuable PR when they were featured in the Barnsley Chronicle on 27 May 2022.

When we welcomed them to our Family Day in Manchester 2022, XLH UK made a presentation to the family to thank them for their tireless efforts.