Dec 15, 2025
We’re delighted to share an incredible fundraising achievement from Holly Knight, who has now completed three half marathons for XLH UK this year! Earlier in the year, we celebrated her completion of the Gloucester Half Marathon, and she’s since gone on to...
Nov 9, 2025
We’re sending a huge congratulations to Mhairi Duncan for completing the Lisbon Marathon on 25th October 2025, raising funds and awareness for XLH UK in the process. Mhairi took on this challenge not only as a personal milestone but to support the community. And...
Aug 13, 2025
We are pleased to share with you a new patient story in which we hear from Amy, who opens up about the personal choices she made when starting her family. Amy has XLH and, after careful consideration, chose IVF to ensure that her two daughters would not carry the XLH...
Jul 25, 2025
On Saturday 21st June, Northern Ireland had its own XLH Family Day and it was a brilliant success! The event brought together families affected by XLH for a day of connection, support, and community. We’ve been told the feedback from parents was really positive,...
Apr 10, 2025
STOP PRESS! Speakers announced We are delighted to confirm the speakers at the next XLH UK Community Day on Sunday 1st June 2025. There is still time to register for the event here. Keynote Speaker – Professor Kassim Javaid on the new Oxford University research...
