Oct 13, 2019
>> Link to Survey << We want to hear from people who have experience of living with inheritable hypophosphatemia’s about what it is like to live with the condition and their experience of current drug treatments and supporting care. Your...
Jan 15, 2019
Did you know that RUDY Study data was included in the recent NICE evaluation in understanding XLH in children? We would like to highlight how important projects like RUDY is and the role it plays when researchers work with the data to better understand disease impact....
Jan 18, 2017
Aged between 13-17, 18-25, 26+? Do you live in Finland, Ireland, France or the UK? And fall into these age categories 13-17, 18-25, 26+? Then, please read on because your input will influence the care for adults across Europe. This is the now the time to focus on...
