James Lind Alliance Rare Musculoskeletal Diseases PSP

Today we have launched the Rare Musculoskeletal Diseases in Adulthood Priority Setting Partnership (PSP).

I’m very happy to share the outcomes from the James Lind Alliance Rare Musculoskeletal Diseases PSP. Many of you gave your time to submit questions and to work through the process to identify the final top 10 questions for future research. We, along with Genetic Alliance, the National Institute of Health Research and others in the industry will encourage researchers to focus their efforts on answering the highest priority questions. This is another big step for the XLH community!

Full report from Genetic Alliance UK can be found here:


More about The James Lind Alliance: http://www.jla.nihr.ac.uk/

I was joined by Miss Winger, Mrs Coleman, Miss Newman