Trustee Sally Hatton on this brilliantly written article on how her challenges with XLH an often with other #rarediseases are sometimes not immediately obvious. The #IAmNumber17 campaign has been critical in providing a platform for the #patientvoice allowing those with rare diseases to be heard.
You can read the article from here: https://iamnumber17.geneticalliance.org.uk/sallys-blog/ ?
