12 events found.
Events
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The Holiday Inn Express, University Street, Belfast The Holiday Inn Express, University Street, Belfast
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Connect – July 2025
Zoom (online meeting)Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]
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Connect – August 2025
Zoom (online meeting)Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]
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Connect – September 2025
Zoom (online meeting)Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]
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Connect – October 2025
Zoom (online meeting)Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]
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Connect – 12th November 2025
Zoom (online meeting)Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]
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Connect with an Expert – 23rd March 2026
Zoom (online meeting)Our community is a valuable source of information and support. From tips and tricks to a listening ear, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community, we host discussions for you to share your experience of XLH, or […]
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Connect with an Expert
OnlineFollowing the success of our last Connect with a Expert, Professor Kassim Javaid - Professor of Osteoporosis and Adult Rare Bone Diseases - will be joining us to discuss the complex relationship between XLH and Parathyroid hormone. They'll be a Q&A, so plenty of opportunity to ask any questions you may have. Put the kettle […]
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Connect with an Expert
Join us on zoom for Connect with an Expert! We're diving into why individual responses to burosumab vary - and what that means for you. Have questions? You'll have the chance to ask Professor Kassim Javaid during the session.
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Connect with an Expert
Join us for our next XLH UK community zoom! This month we're thrilled to welcome Suzanne Sykes, a dentist with a valuable specialist interest in XLH. Our regular Q&A sessions are a great way to learn and connect so bring a cuppa, bring your questions and we look forward to seeing you there. Register […]
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Connect with an Expert
Join us for our next Connect with an Expert, where we'll be joined by the excellent Fiona Kirkham-Wood who will be talking about women's health. Register below to receive a link and we'll see you there!
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XLH UK Community Day 2026
The Lowry, Salford Pier 8, The Quays, Salford, Manchester, United KingdomFun in Manchester! We had a great day filled with insightful talks and reinforced a sense of community built on shared experience. Our guest speaker Prof Raja Padidela, Consultant Paediatric Endocrinologist & Metabolic Bone Diseases, from Royal Manchester Children’s Hospital provided the latest overview on the clinical realities of XLH at different ages. Dr Fiona Kirkham-Wilson from […]