Oct 7, 2023
At a recent Senedd roundtable event, Oliver Gardiner, representing XLH UK, and Claire Lewis, a Welsh XLH patient, were joined by Mike Hedges MS. Mike Hedges, who chairs the Senedd Cross Party Group on Rare Diseases, brought invaluable expertise and leadership to the...
Dec 5, 2018
[vc_row][vc_column][cs_headings style=”simple” text=”On 5th December 2018, Shona Robison MSP welcomed the Brittle Bone Society to Holyrood to top off an exciting year of celebrations which have taken place throughout the 50th Anniversary year of the...
Jun 6, 2018
[vc_row][vc_column][cs_headings style=”simple” title=”BBS Westminster Parliamentary Reception” text=”On Wednesday 6th June, XLH UK trustees were invited to attend a parliamentary reception at Westminster to celebrate the Brittle Bone...
