Oct 7, 2023
At a recent Senedd roundtable event, Oliver Gardiner, representing XLH UK, and Claire Lewis, a Welsh XLH patient, were joined by Mike Hedges MS. Mike Hedges, who chairs the Senedd Cross Party Group on Rare Diseases, brought invaluable expertise and leadership to the...
Jul 16, 2023
Welcome to XLH’s Navigator newsletter for Summer 2023. Hear about our the Family Day and Oliver’s visit to the Houses of Parliament. Don’t miss the next newsletter and subscribe here: https://xlhuk.org/registration-form/ You can view it here:...
Feb 15, 2023
Scotland agrees access to burosumab for adults XLH UK founder Oliver Gardiner: “This is fantastic news for adults with XLH in Scotland and is a leap forward, setting a precedent as the first of the UK nations to recommend burosumab for the eligible adult population....
