Westminster Parliamentary Reception

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ECTS 2018 report

XLH UK attended the European Calcified Tissue Society congress (ECTS) in Valencia, Spain. We were also fortunate to attend the first Rare Bone Group meeting alongside the congress to meet and work with other rare bone groups. Please do have a look at the report...

Genetic Disorders UK, Leadership Symposium

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Survey for adults to help with future treatments

Aged between 13-17, 18-25, 26+? Do you live in Finland, Ireland, France or the UK? And fall into these age categories 13-17, 18-25, 26+? Then, please read on because your input will influence the care for adults across Europe. This is the now the time to focus on...