Sep 24, 2020
We are excited to have worked with Health Awareness on their 2020 Rare Diseases campaign. The campaign features exclusive content on XLH UK and the International XLH Alliance, discussing the impact of late diagnosis and the stigma often associated to our rare disease...
May 21, 2020
>> Link to view paper online << Delighted to be sharing a new publication that XLH UK and XLH Network was involved in. A lot of you here were instrumental in participating in the study and I’d like to thank you all for your input ! The study...
Feb 10, 2020
Children and adolescents with XLH will now be able to access burosumab on the NHS in Scotland >> Link to download Press Release << London, England, February 10, 2020. XLH UK, a nonprofit trust representing patients with XLH in the United Kingdom...
Oct 13, 2019
>> Link to Survey << We want to hear from people who have experience of living with inheritable hypophosphatemia’s about what it is like to live with the condition and their experience of current drug treatments and supporting care. Your...
