Jul 11, 2023
Newsflash! We are delighted to announce that the partnership between Kyowa Kirin and XLH UK has been recognised in the PPI 2023 Awards. This is for a partnership that led to a framework of a networked service model on care of adults with rare bone conditions. For more...
May 5, 2023
Welcome to XLH’s Navigator newsletter for Spring 2023. Hear about our upcoming Family Day and how a team in Northern Ireland have been inspiring us with their fitness and fundraising! Don’t miss the next newsletter and subscribe here:...
Feb 16, 2023
Welcome to XLH’s 3rd edition Navigator newsletter. Hear about how new medicines get approved for funding and the priorities XLH UK has set to help all those with XLH find their best care. Don’t miss the next newsletter and subscribe here:...
Feb 13, 2023
Commenting on SMC’s decision, XLH UK founder Oliver Gardiner explained that “This is fantastic news for adults with XLH in Scotland and is a leap forward, setting a precedent as the first of the UK nations to recommend burosumab for the eligible adult population. This...
Jan 17, 2023
Welcome to XLH’s 2nd edition Navigator newsletter. We hope that our updates in this edition will help you to navigate your way through some of the challenges that XLH presents. Don’t miss the next newsletter and subscribe here:...
