XLH UK supports those with X-linked hypophosphataemia and related disorders.
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Mhairi runs the Lisbon Marathon for XLH UK
We’re sending a huge congratulations to Mhairi Duncan for completing the Lisbon Marathon on 25th October 2025, raising funds and awareness for XLH UK in the process. Mhairi took on this challenge not only as a personal milestone but to support the community. And she's...
Rollout of burosumab pre-filled syringes
To make treatment easier and safer, burosumab will soon be available in a Pre-Filled Syringe (PFS) across the UK, for adult and children patients. The move to pre-filled syringes needs to happen in a careful and responsible way, because the existing stock of...
Amy’s Story: A Personal Journey of Family Planning with XLH
We are pleased to share with you a new patient story in which we hear from Amy, who opens up about the personal choices she made when starting her family. Amy has XLH and, after careful consideration, chose IVF to ensure that her two daughters would not carry the XLH...