We are pleased to announce that the next XLH UK Community Day will take place on Sunday 2nd June 2024. Our annual event will be bigger and better than ever. For how the day went, follow the link here.

It will be held at the National Conference Centre, Birmingham. The NCC is a terrific location attached to the National Motorcycle Museum and with great transport links, making it a great day out. Discounted entry to the museum is included for those registered.

We will be organising expert speakers on different aspects of XLH and providing lunch along with family entertainment, giving you time and space to meet others in the community. The agenda for the day is shown below.

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Arrive from 10.30 for refreshments
11am Opening and keynote speech – Prof Kassim Javaid
11.45 Update on Health Technology Assessments
12.00 Physiotherapy for strength and recovery with XLH
12.30 Q&A talk with Kieron Innes about his gymnastics career & XLH
12.45 Group photo and lunch
13.00 – 15.00 Informal networking and children’s entertainment

We are thrilled to share that we have been successful in getting a National Lottery award from The National Lottery Community fund. This will allow us to expand what we offer and to include more of the community, with everyone welcome. XLH UK has a limited fund to support those who most need it for travel. If you would like to come but are not able to cover the cost of tickets to Birmingham, please let us know when you register.