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Publication
I Am Number Seventeen
Conference, News
Webinar on the unrecognised burden of XLH in adults
Publication, Research, Treatment
Clinical guidelines for burosumab in the treatment of XLH in children and adolescents: British paediatric and adolescent bone group recommendations
News, Publication
XLH UK features in the New Scientist magazine
Publication, Research
Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance
News, Treatment
Scottish Medicines Consortium enables access to burosumab for treating X-linked hypophosphataemia
Call to Action, News
Help those in Scotland and Ireland access new treatment
Conference, Research
International Conference on Children’s Bone Health, 2019
News, Treatment
NICE u-turn approves first therapy for children with XLH
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Modern Style 2

Publication
I Am Number Seventeen
Conference, News
Webinar on the unrecognised burden of XLH in adults
Publication, Research, Treatment
Clinical guidelines for burosumab in the treatment of XLH in children and adolescents: British paediatric and adolescent bone group recommendations
News, Publication
XLH UK features in the New Scientist magazine
Publication, Research
Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance
News, Treatment
Scottish Medicines Consortium enables access to burosumab for treating X-linked hypophosphataemia
Call to Action, News
Help those in Scotland and Ireland access new treatment
Conference, Research
International Conference on Children’s Bone Health, 2019
News, Treatment
NICE u-turn approves first therapy for children with XLH