Our Latest News

August 29, 2023

XLH UK Competition Winner

Thank you to everyone who suggested some brilliant names for our new XLH UK mascot!  It was very hard to pick just one, but we’re pleased to say that the winning name is HUXLEY.  A big...

By Claire WarburtonCall to Action, News
July 11, 2023

XLH UK recognised in PPI 2023 Awards

Newsflash! We are delighted to announce that the partnership between Kyowa Kirin and XLH UK has been recognised in the PPI 2023 Awards. This is for a partnership that led to a framework of a networked service...

By Admin OGNews, Publication
July 7, 2023

XLH UK Competition Time!

Thank you to Anne Williams who attended our recent family day in Bristol and brought this cute soft toy family with her. Anne has kindly donated them, and we need some help to name them because the little one...

By Claire WarburtonCall to Action, News
XLH UK Newsletter Navigator
May 5, 2023

XLH UK Newsletter – Navigator Spring 2023 Edition

Welcome to XLH’s 3rd ediition Navigator newsletter. We hope that our updates in this edition will help you to navigate your way through some of the challenges that XLH presents. Don’t miss the next...

By Admin OGNews
XLH UK Newsletter Navigator
February 16, 2023

XLH UK Newsletter – Navigator 3rd Edition

Welcome to XLH’s 3rd ediition Navigator newsletter. We hope that our updates in this edition will help you to navigate your way through some of the challenges that XLH presents. Don’t miss the next...

By Admin OGNews
XLH UK Newsletter Navigator
January 17, 2023

XLH UK Newsletter – Navigator 2nd Edition

Welcome to XLH’s 2nd ediition Navigator newsletter. We hope that our updates in this edition will help you to navigate your way through some of the challenges that XLH presents. Don’t miss the next...

By Admin OGNews
XLH UK Newsletter Navigator
November 14, 2022

Launching XLH UK’s Newsletter – Navigator

Welcome to XLH’s first newsletter called ‘Navigator’. XLH UK was set up to help those with XLH and related disorders within the UK through research, support and advocacy. We hope that a...

By Admin OGNews
July 24, 2022

3rd International XLH Symposium

The 3rd International XLH Symposium took place on the 1st July at University College, Dublin. The final session of the day was ‘Global Health Disparities and Access to Care’, where Oliver Gardiner presented...

By Admin OGConference, News, Research
February 25, 2022

XLH UK adult care webinar #2

Please join Associate Prof Kassim Javaid and Oliver Gardiner on Wednesday 2nd March 2022 at 8pm-9pm to give a key updates on adult access to burosumab. We will be covering:Update on NICEUpdate on...

By Admin OGNews, Webinar