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XLH UK Newsletter Navigator
May 5, 2023

XLH UK Newsletter – Navigator Spring 2023 Edition

Welcome to XLH’s 3rd ediition Navigator newsletter. We hope that our updates in this edition will help you to navigate your way through some of the challenges that XLH presents. Don’t miss the next...

By Admin OGNews
XLH UK Newsletter Navigator
February 16, 2023

XLH UK Newsletter – Navigator 3rd Edition

Welcome to XLH’s 3rd ediition Navigator newsletter. We hope that our updates in this edition will help you to navigate your way through some of the challenges that XLH presents. Don’t miss the next...

By Admin OGNews
XLH UK Newsletter Navigator
January 17, 2023

XLH UK Newsletter – Navigator 2nd Edition

Welcome to XLH’s 2nd ediition Navigator newsletter. We hope that our updates in this edition will help you to navigate your way through some of the challenges that XLH presents. Don’t miss the next...

By Admin OGNews
XLH UK Newsletter Navigator
November 14, 2022

Launching XLH UK’s Newsletter – Navigator

Welcome to XLH’s first newsletter called ‘Navigator’. XLH UK was set up to help those with XLH and related disorders within the UK through research, support and advocacy. We hope that a...

By Admin OGNews
July 24, 2022

3rd International XLH Symposium

The 3rd International XLH Symposium took place on the 1st July at University College, Dublin. The final session of the day was ‘Global Health Disparities and Access to Care’, where Oliver Gardiner presented...

By Admin OGConference, News, Research
February 25, 2022

XLH UK adult care webinar #2

Please join Associate Prof Kassim Javaid and Oliver Gardiner on Wednesday 2nd March 2022 at 8pm-9pm to give a key updates on adult access to burosumab. We will be covering:Update on NICEUpdate on...

By Admin OGNews, Webinar
February 14, 2022

XLH UK adult care webinar #1

Please join Associate Prof Kassim Javaid and Oliver Gardiner on Wednesday 16th February 2022 at 8pm-9pm to give a key updates on adult access to burosumab. We will be covering:Medicine review process and where...

By Admin OGNews, Webinar
October 23, 2021

International XLH Awareness Day

Today is International XLH Awareness Day!!! Earlier this year we surveyed 350 adults with XLH to look at the current care standards that we receive. Comparing the current care standards to the clinical...

By Admin OGPublication, Treatment
August 18, 2021

XLH at the Paralympic Games, Tokyo 2020

We are very excited to support Paralympian XLH’er Jennyfer Parinos at this year’s games in Tokyo. Coverage for Table Tennis starts on Wednesday the 25th of August on Channel 4. Wishing...

By Admin OGNews
April 24, 2021

Status Update

Hi all, there have been lots of developments in the last 4 months that I am keen to share with you. Firstly, earlier in the year we joined NICE’s Scientific Advice committee to offer insights and advice on...

By Admin OGNews, Research