2 October, 2022, XLH UK Family Day, Manchester.
11 October, 2020, XLH Session (updates, treatments, strategy and the communty), MSUK. Online.
12 October, 2019, Metabolic Support and XLH UK. Birmingham
6 April, 2019, XLH Patient Information Day, Medialis and XLH UK and Birmingham Women’s and Children’s NHS Foundation Trust
14 October, 2017, Climb, and Central Manchester Healthcare Trust. Birmingham
14 September 2013, XLH UK and XLH Network, Inc. The Vyne Basinstoke
8 September, 2012, XLH UK and XLH Network, Inc. Basildon Park. Reading
16 October, 2010, The first XLH families meet, Wallingford