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X-ORIGINAL-URL:https://xlhuk.org
X-WR-CALDESC:Events for XLH UK
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TZID:UTC
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DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20261025T110000
DTEND;TZID=UTC:20261025T150000
DTSTAMP:20261027T164654Z
CREATED:20261027T163137Z
LAST-MODIFIED:20261027T164654Z
UID:30954-1792926000-1792940400@xlhuk.org
SUMMARY:XLH UK Community Day 2026
DESCRIPTION:Fun in Manchester!  We had a great day filled with insightful talks and reinforced a sense of community built on shared experience.\nOur guest speaker Prof Raja Padidela\, Consultant Paediatric Endocrinologist & Metabolic Bone Diseases\, from Royal Manchester Children’s Hospital provided the latest overview on the clinical realities of XLH at different ages. Dr Fiona Kirkham-Wilson from Oxford University shared progress from the RUDY Study\, including recent findings on joint stiffness in XLH and unveiled the new-look\, streamlined RUDY website for people living with XLH. Children enjoyed face-painting and a 1-metre high dancing robot\, whilst we considered how best to stay connected as a community. If you would like to view the slides from our speaker they are available here.  
URL:https://xlhuk.org/event/xlh-uk-community-day-2026/
LOCATION:The Lowry\, Salford\, Pier 8\, The Quays\, Salford\, Manchester\, M50 3AZ\, United Kingdom
CATEGORIES:Conference and webinar,Past Events
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
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