BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//XLH UK - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://xlhuk.org
X-WR-CALDESC:Events for XLH UK
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20220101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20241002T180000
DTEND;TZID=UTC:20241002T190000
DTSTAMP:20260419T112955
CREATED:20240813T184436Z
LAST-MODIFIED:20240813T184436Z
UID:30043-1727892000-1727895600@xlhuk.org
SUMMARY:Connect - October 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 2nd October at 6pm. The special theme will be Exercise and Weight Management. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE \n 
URL:https://xlhuk.org/event/connect-october-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240903T180000
DTEND;TZID=UTC:20240903T190000
DTSTAMP:20260419T112955
CREATED:20240813T184735Z
LAST-MODIFIED:20240831T080526Z
UID:30034-1725386400-1725390000@xlhuk.org
SUMMARY:Connect - September 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Tuesday 22nd May at 6pm.  The special theme will be burosumab. \nUnfortunately this Connect session has had to be cancelled because of illness.  \n  \n 
URL:https://xlhuk.org/event/connect-september-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240522T180000
DTEND;TZID=UTC:20240522T190000
DTSTAMP:20260419T112955
CREATED:20240514T083951Z
LAST-MODIFIED:20240514T083955Z
UID:29882-1716400800-1716404400@xlhuk.org
SUMMARY:Connect - May 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 22nd May at 6pm. \nIf you want to join you need to register in advance.  \nTo register with Zoom please CLICK HERE \n 
URL:https://xlhuk.org/event/connect-may-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240424T180000
DTEND;TZID=UTC:20240424T190000
DTSTAMP:20260419T112955
CREATED:20240228T155451Z
LAST-MODIFIED:20240424T132007Z
UID:29610-1713981600-1713985200@xlhuk.org
SUMMARY:Connect - April 2024
DESCRIPTION:SORRY< THIS EVENT HAS BEEN CANCELLED DUE TO ILLNESS \nOur community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. This Connect will take place on Zoom on Wednesday 24th April at 6pm. If you want to join you need to register in advance. To register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-community-april24/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240313T180000
DTEND;TZID=UTC:20240313T190000
DTSTAMP:20260419T112955
CREATED:20240227T194611Z
LAST-MODIFIED:20240307T130934Z
UID:29608-1710352800-1710356400@xlhuk.org
SUMMARY:XLH Connect - March 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 13th March at 6pm. \nIf you want to join you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/community-connect-march24/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240122T180000
DTEND;TZID=UTC:20240122T190000
DTSTAMP:20260419T112955
CREATED:20231006T183724Z
LAST-MODIFIED:20240107T191846Z
UID:758-1705946400-1705950000@xlhuk.org
SUMMARY:Connect event - January
DESCRIPTION:Join us online for an informal discussion with other members of the XLH community. \nTo join you must register through Zoom by clicking this link https://zoom.us/meeting/register/tJ0ucemtpz4tHdRgXPhLY7V3r5M-_RvHt0bQ
URL:https://xlhuk.org/event/connect-event-january-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231121T180000
DTEND;TZID=UTC:20231121T190000
DTSTAMP:20260419T112955
CREATED:20231006T180800Z
LAST-MODIFIED:20231121T163429Z
UID:751-1700589600-1700593200@xlhuk.org
SUMMARY:Connect event - November
DESCRIPTION:Register today at: https://zoom.us/meeting/register/tJ0vf-6ppz0tHNfo78W5rkCykMknI1IG3WSL
URL:https://xlhuk.org/event/connect-event-november-2023/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
END:VEVENT
END:VCALENDAR