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BEGIN:VEVENT
DTSTART;TZID=UTC:20260323T180000
DTEND;TZID=UTC:20260323T190000
DTSTAMP:20260419T100249
CREATED:20260319T093309Z
LAST-MODIFIED:20260323T161313Z
UID:30670-1774288800-1774292400@xlhuk.org
SUMMARY:Connect with an Expert - 23rd March 2026
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect with an Expert will take place on Zoom on Monday 23rd March from 18.00-19.00. \nPlease register in advance to join via Zoom here. https://zoom.us/meeting/register/hjixy0jOToSUfOWCtpxIXw
URL:https://xlhuk.org/event/connect-with-an-expert-23rd-march-2026/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/jpeg:https://xlhuk.org/wp-content/uploads/2026/03/Copy-of-Connect-Icon-Facebook-Post.jpg
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251112T180000
DTEND;TZID=UTC:20251112T190000
DTSTAMP:20260419T100249
CREATED:20250617T170230Z
LAST-MODIFIED:20251104T140715Z
UID:30439-1762970400-1762974000@xlhuk.org
SUMMARY:Connect - 12th November 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 12th November from 18.00-19.00. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-november-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251001T190000
DTEND;TZID=UTC:20251001T200000
DTSTAMP:20260419T100250
CREATED:20250617T165833Z
LAST-MODIFIED:20250617T171504Z
UID:30437-1759345200-1759348800@xlhuk.org
SUMMARY:Connect - October 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 1st October from 19.00-20.00. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-october-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250903T180000
DTEND;TZID=UTC:20250903T190000
DTSTAMP:20260419T100250
CREATED:20250617T165345Z
LAST-MODIFIED:20250617T165345Z
UID:30435-1756922400-1756926000@xlhuk.org
SUMMARY:Connect - September 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 3rd September from 18.00-19.00. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-september-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250806T190000
DTEND;TZID=UTC:20250806T200000
DTSTAMP:20260419T100250
CREATED:20250617T164948Z
LAST-MODIFIED:20250617T164948Z
UID:30433-1754506800-1754510400@xlhuk.org
SUMMARY:Connect - August 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 6th August from 19.00-20.00. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-august-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250702T180000
DTEND;TZID=Europe/London:20250702T190000
DTSTAMP:20260419T100250
CREATED:20250617T164143Z
LAST-MODIFIED:20250617T164143Z
UID:30431-1751479200-1751482800@xlhuk.org
SUMMARY:Connect - July 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 2nd July from 18.00-19.00. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-july-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250507T180000
DTEND;TZID=Europe/London:20250507T190000
DTSTAMP:20260419T100250
CREATED:20250102T161051Z
LAST-MODIFIED:20250102T161051Z
UID:30245-1746640800-1746644400@xlhuk.org
SUMMARY:Connect - May 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 7th May at 6pm. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-may-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250402T180000
DTEND;TZID=Europe/London:20250402T190000
DTSTAMP:20260419T100250
CREATED:20250102T161028Z
LAST-MODIFIED:20250102T161028Z
UID:30243-1743616800-1743620400@xlhuk.org
SUMMARY:Connect - April 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 2nd April at 6pm. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-april-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250305T180000
DTEND;TZID=Europe/London:20250305T190000
DTSTAMP:20260419T100250
CREATED:20250102T160945Z
LAST-MODIFIED:20250102T160945Z
UID:30241-1741197600-1741201200@xlhuk.org
SUMMARY:Connect - March 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 5th March at 6pm. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-march-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250205T180000
DTEND;TZID=Europe/London:20250205T190000
DTSTAMP:20260419T100250
CREATED:20250102T160914Z
LAST-MODIFIED:20250102T160914Z
UID:30239-1738778400-1738782000@xlhuk.org
SUMMARY:Connect - February 2025
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 5th February at 6pm. \nIf you want to join\, you need to register in advance. \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-february-2025/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241204T180000
DTEND;TZID=UTC:20241204T190000
DTSTAMP:20260419T100250
CREATED:20240813T183129Z
LAST-MODIFIED:20240813T185503Z
UID:30053-1733335200-1733338800@xlhuk.org
SUMMARY:Connect - December 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 4th December at 6pm.  The special theme will be Pregnancy. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE \n 
URL:https://xlhuk.org/event/connect-december-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241106T180000
DTEND;TZID=UTC:20241106T190000
DTSTAMP:20260419T100250
CREATED:20240813T184028Z
LAST-MODIFIED:20240813T185135Z
UID:30050-1730916000-1730919600@xlhuk.org
SUMMARY:Connect - November 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 6th November at 6pm.  The special theme is Mental Health. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE \n 
URL:https://xlhuk.org/event/connect-november-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241002T180000
DTEND;TZID=UTC:20241002T190000
DTSTAMP:20260419T100250
CREATED:20240813T184436Z
LAST-MODIFIED:20240813T184436Z
UID:30043-1727892000-1727895600@xlhuk.org
SUMMARY:Connect - October 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 2nd October at 6pm. The special theme will be Exercise and Weight Management. \nIf you want to join\, you need to register in advance.  \nTo register with Zoom please CLICK HERE \n 
URL:https://xlhuk.org/event/connect-october-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240903T180000
DTEND;TZID=UTC:20240903T190000
DTSTAMP:20260419T100250
CREATED:20240813T184735Z
LAST-MODIFIED:20240831T080526Z
UID:30034-1725386400-1725390000@xlhuk.org
SUMMARY:Connect - September 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Tuesday 22nd May at 6pm.  The special theme will be burosumab. \nUnfortunately this Connect session has had to be cancelled because of illness.  \n  \n 
URL:https://xlhuk.org/event/connect-september-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240522T180000
DTEND;TZID=UTC:20240522T190000
DTSTAMP:20260419T100250
CREATED:20240514T083951Z
LAST-MODIFIED:20240514T083955Z
UID:29882-1716400800-1716404400@xlhuk.org
SUMMARY:Connect - May 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 22nd May at 6pm. \nIf you want to join you need to register in advance.  \nTo register with Zoom please CLICK HERE \n 
URL:https://xlhuk.org/event/connect-may-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240424T180000
DTEND;TZID=UTC:20240424T190000
DTSTAMP:20260419T100250
CREATED:20240228T155451Z
LAST-MODIFIED:20240424T132007Z
UID:29610-1713981600-1713985200@xlhuk.org
SUMMARY:Connect - April 2024
DESCRIPTION:SORRY< THIS EVENT HAS BEEN CANCELLED DUE TO ILLNESS \nOur community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. This Connect will take place on Zoom on Wednesday 24th April at 6pm. If you want to join you need to register in advance. To register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/connect-community-april24/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240313T180000
DTEND;TZID=UTC:20240313T190000
DTSTAMP:20260419T100250
CREATED:20240227T194611Z
LAST-MODIFIED:20240307T130934Z
UID:29608-1710352800-1710356400@xlhuk.org
SUMMARY:XLH Connect - March 2024
DESCRIPTION:Our community is a valuable source of information and support. From tips and tricks to a listening ear\, meeting others from our community can be a source of comfort or inspiration. Following requests to have more opportunities to meet others in the community\, we host discussions for you to share your experience of XLH\, or to listen to what others have experienced. \nThis Connect will take place on Zoom on Wednesday 13th March at 6pm. \nIf you want to join you need to register in advance.  \nTo register with Zoom please CLICK HERE
URL:https://xlhuk.org/event/community-connect-march24/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/09/Connect-Icon.png
ORGANIZER;CN="XLH UK":MAILTO:contact@xlhuk.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240122T180000
DTEND;TZID=UTC:20240122T190000
DTSTAMP:20260419T100250
CREATED:20231006T183724Z
LAST-MODIFIED:20240107T191846Z
UID:758-1705946400-1705950000@xlhuk.org
SUMMARY:Connect event - January
DESCRIPTION:Join us online for an informal discussion with other members of the XLH community. \nTo join you must register through Zoom by clicking this link https://zoom.us/meeting/register/tJ0ucemtpz4tHdRgXPhLY7V3r5M-_RvHt0bQ
URL:https://xlhuk.org/event/connect-event-january-2024/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231121T180000
DTEND;TZID=UTC:20231121T190000
DTSTAMP:20260419T100250
CREATED:20231006T180800Z
LAST-MODIFIED:20231121T163429Z
UID:751-1700589600-1700593200@xlhuk.org
SUMMARY:Connect event - November
DESCRIPTION:Register today at: https://zoom.us/meeting/register/tJ0vf-6ppz0tHNfo78W5rkCykMknI1IG3WSL
URL:https://xlhuk.org/event/connect-event-november-2023/
LOCATION:Zoom (online meeting)
CATEGORIES:Online Support Meeting
ATTACH;FMTTYPE=image/png:https://xlhuk.org/wp-content/uploads/2023/10/Connect-550x350-1.png
END:VEVENT
END:VCALENDAR