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DTSTART;TZID=UTC:20231202T100000
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SUMMARY:Special Webinar - Call to Action + Q&A
DESCRIPTION:In this webinar\, we hear about the NICE draft guidance regarding access to burosumab for adults in England. We hear about why it is important for the community to raise their voice and how you can contribute to the evidence.   The video can be watched again on You Tube on our channel @XLHUK 
URL:https://xlhuk.org/event/special-webinar-call-to-action-qa/
LOCATION:Zoom (online meeting)
CATEGORIES:Conference and webinar,Past Events
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