Nov 19, 2024
Resources are available if you are starting on burosumab The NHS has now published guidelines so that specialists can prescribe burosumab to UK adults with a diagnosis of XLH. You can watch the recording of a webinar that XLH UK ran, to provide more information about...
Feb 25, 2022
Please join Associate Prof Kassim Javaid and Oliver Gardiner on Wednesday 2nd March 2022 at 8pm-9pm to give a key updates on adult access to burosumab. We will be covering:Update on NICEUpdate on Pathway- Topic Selection Survey- Writing Group- Next StepsPatient Case...
Feb 14, 2022
Please join Associate Prof Kassim Javaid and Oliver Gardiner on Wednesday 16th February 2022 at 8pm-9pm to give a key updates on adult access to burosumab. We will be covering:Medicine review process and where we are nowNew Clinical GuidelinesQuality of Life...
Feb 28, 2021
Prof Stuart Ralston and his team have asked if XLH UK members would be interested in joining his disease awareness session on XLH this TUESDAY. Stuart will be joined by patient Ryan Frew on his experiences with XLH. It’ll be a great talk if you can make it and a...
