b) provision of a support network for families suffering from the effects of X-Linked Hypophosphatemia and related disorders;
c) advocating early diagnosis and well-managed treatment of X-Linked Hypophosphatemia and related disorders.
b) provision of a support network for families suffering from the effects of X-Linked Hypophosphatemia and related disorders;
c) advocating early diagnosis and well-managed treatment of X-Linked Hypophosphatemia and related disorders.
The mission of XLH UK is to promote XLH and related disorders, awareness and education for affected families, medical professionals, and the community at-large within the UK; to support physicians and other providers of medical care for better diagnosis and treatment; to create resources and a community for affected individuals and their families within the UK so they can understand and cope with the complications of the disease; and to foster the search for a cure.