The mission of XLH UK is to promote XLH and related disorders, awareness and education for affected families, medical professionals, and the community at-large within the UK; to support physicians and other providers of medical care for better diagnosis and treatment; to create resources and a community for affected individuals and their families within the UK so they can understand and cope with the complications of the disease; and to foster the search for a cure.

Connect with our community
Join our private Facebook group to connect with families alike