Did you know that RUDY Study data was included in the recent NICE evaluation in understanding XLH in children? We would like to highlight how important projects like RUDY is and the role it plays when researchers work with the data to better understand disease impact. If you’ve not already done so, I’ll ask that you to sign up to RUDY, and if you already have, that you are logging back in to keep on top of your surveys. This is going to be key when NICE evaluate future treatments for adult care.
Find out more here: https://research.ndorms.ox.ac.uk/rudy/