XLH UK support those with XLH and related disorders.
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XLH is an inherited disease, which means it runs in families. In some cases, XLH may occur spontaneously.


New symptoms of XLH may appear at any age and can worsen over time.


Individuals with XLH will continue to experience symptoms throughout life. These symptoms may be managed.
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Across the whole of the UK, the XLH community is raising awareness through a wide range of exciting events and social activities.

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