XLH UK support those with XLH and related disorders.
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Hereditary

XLH is an inherited disease, which means it runs in families. In some cases, XLH may occur spontaneously.

Progressive

New symptoms of XLH may appear at any age and can worsen over time.

Lifelong

Individuals with XLH will continue to experience symptoms throughout life. These symptoms may be managed.
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Learn about the role of FGF23 in phosphate regulation.
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Find out what's happening in the UK

Across the whole of the UK, the XLH community is raising awareness through a wide range of exciting events and social activities.

If you would like to take part in an event, you can find the perfect one to suit your needs and interests with our events page.

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